Dear @spannerkate , hoping for the very very best for Richard as he starts next week and love and thoughts to you both. It's very frustrating to think that there were so few after the last lot of chemo but now they've all come back again. It always takes me a little while to get my head around new news, but you will get your head around it and will be ready to fight again. I was told that the primary bowel cancer was pretty stable but it was a good idea to get on with surgery. H, Hi Rebecca, It is hard to be told something like that. Because it has spread is one reason they tell they cant cure you. My team do not think that I am curable but I am treatable which is different. A better choice is to discuss the likely results of such treatments and to … He explores how these patients find meaning, cope, and build resilience. have hope and never give up! Can't think why I haven't responded earlier to your post, I guess there has been a lot happening in my life in the past few weeks. Im someone with ‘incurable’ cancer and would say it’s just a word, try not to focus on it. God bless you and your dad and Lisa @ Aisling00. Back in June, our oncologist told Da ‘he would get him through this’ and although that was vague, this is all we wanted. Thanks again to you all I'm so happy that you responded made my day Our father was on the couch and weak, but he was gaining weight and getting through the chemo. So I don’t think of myself as having ‘incurable cancer’, rather that I have advanced cancer I’m controlling. The NHS has set out how it plans to return essential cancer services to pre-COVID-19 levels in a new plan called The Cancer Recovery Plan. You have alot to think about when they tell you those words. I love so much your stories that say I was told a month and I'm still here years later. Julie, Hi Rebecca Cancer Council NSW is registered with the Australian Taxation Office as an Income Tax Exempt Charity: Charitable Fundraising Authority No. Lovely to hear from you again, sending love. When da started the chemo in June, it was after a delay as we switched to a more positive oncologist and my Da was and is till on very strong antisickness because of sickness since his operation. We are on watch and wait three monthly scans and the anxiety is sometimes crippling isn't it. Cheers Vicki His oncologist used the phrase "we will probably never be able to get rid of these". But we all have faith in our teams, and hope for the future. The worse my pain gets though, the more I get the feeling that its not going so well and my last scan wasn't good. Please don’t apologise, on this journey we do have to look after ourselves when we need to, it’s important. In that moment, I became a member of a community. We have a better doctor now. Limited research has investigated the specific needs of patients with advanced incurable cancer. Cheers Hi there, However, I'm facing issues that I thought I'd face in my old age, things like tying up loose ends, not leaving things unsaid, writing my will, worrying if the God I pray to is listening, or even there. @Vicki Anne, thanks, you're right, at no age are you ready to deal with dying. Registered charity number (England and Wales) 1071038 Scottish charity number SC040914. Sending you both best wishes and hugs. © Cancer Council NSW 2021 Head Office Address: 153 Dowling Street, Woolloomooloo NSW 2011. The only you have total control over is your ATTITUDE, Hi everyone, He said he's scared that he will feel ill forever. A mum was given the heartbreaking news that she has incurable breast cancer just days after she gave birth to twins. This research aims to explore patients’ experiences and perspectives in relation … Richard is struggling to accept this, and worries that he'll feel ill forever. Share your story in our online journal space. A group of people connected by something that we cannot change or control. i believe it has a lot ti do with mind over matter. Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work. Brain - cyber knife, Also if poss get to sea and beautiful places. They cant tell where it may pop up next. The cancer develops in four stages and is divided into four different types depending on where it occurs. We still have a fight on our hands but we always have an aim to beat this. That is something else you need to keep an eye on - what clinical trials are. When cancer spreads (called metastatic cancer), it's much harder to treat. Sophie Sabbage The Cancer Whisperer gets half a page in The Observer for her rejection of the idea of 'battling cancer', as if it was a new idea. What a lovely post. The aim of this study was to describe the prevalence of perceived needs among this population. Even in cases of incurable cancer, palliative or experimental therapies may improve quality and extent of life (see also Overview of Cancer Therapy). Ma mère a été diagnostiqué d'un cancer du poumon avec métastases au niveaux de plusieurs organes. Eventually I will become resistant to the treatment but already there are newer treatments in clinical trial that are looking real good. Maybe one day we'll get to the stage where he can have surgery or ablation, we can only hope I guess! Have children, start a business, go more places overseas, finish my masters. I do think it's really impressive how you are dealing with this They took 80% of my liver and everyone was very pleased with how it had gone. It is normal to find it more difficult to tell your family how you feel, your thoughts, fears and feelings, in order to try and protect them at this difficult time. It’s good to hear from you but I’m sorry to hear of the developments for your partner. able cancer would perceive their self-efficacy and subsequent performance as better than nurses caring for patients with chronic conditions. Just hang in there and things will work out. I hope that's what happens to me!! I think he'll be starting the chemo next week. It is never ideal in our personal plans for the future. Last year my main objective was ‘cure’ In August 2016 I had nothing to do with Breast Cancer Care, no knowledge about breast cancer drugs, and only a cursory understanding of ‘metastatic’. Anyway, I can respond from the point of someone who has lived with an incurable cancer for the past twelve years and managed to maintain a fairly active life of good quality in that time. I get jealous and resentful of my friends (although so grateful of them)for having beers on the weekend and bitching about work like I use to. keep fighting and never give up! Also look at pension and all benefits blue badge so on His oncologist didn't really have any advice other than to keep taking the antisickness drugs. Getting rid of as many as possible with chemo and then hoping they don't come back during breaks from treatment. Having an incurable cancer is of course also serious but there is often lots of treatments available to keep the illness under control. He's collected the stories into a book, "Roads to Meaning and Resilience with Cancer: 40 Stories of Coping, Finding Meaning, and Building Resilience While Living with Incurable Lung Cancer." However, physicians should resist giving ineffective therapies. The rest of the song is a bit melancholy I'm afraid. No research, however, has explored in depth the role of appearance in the experiences of individuals who have incurable cancer. One such organisation is the Warwick Foundation - http://www.thewarwickfoundation.org.au. Hi there, I wanted to find some people, or someone who's been told they're cancer is incurable, or that their chances aren't looking very good. This is done using long term / maintenance chemo which is really doing the job for me. We were upset but we stuck to our positive aims to fight it. My cancer has been responding well to chemo so far but it will never completely go away. His team will find a way through this for Richard. I hope it works as well as it did last time, and maybe if they don't leave such a huge gap between treatment there's a chance the liver tumours will be obliterated and not come back. The capox worked brilliantly for my husband and it will for yours too. It’s taken a long time, and lots of counselling, but I’ve now come to terms with the fact that this cancer will kill me. Hope you had a good christmas and new year. my partner who is also young is fighting it fit.. of course after chemo he feels crap but he's doing very well.. i think that altho it sucks to have this disease at a young age you also have your youth on your side Yes, that's where my forum name comes from. I was diagnosed in June, Next step is more of the same chemo he had at the start of the year (capox) since it worked so well last time. I have oesophageal cancer with secondaries to the liver. Astre jeu, 04/06/2015 - 15:23 (5) commentaire(s) Bonjour. Well of course, I had gone from not being able to pick up a pen to umpiring basketball and I couldn't do jump balls ... that was a problem! Hi @spannerkate Four days ago I was diagnosed with incurable bowel cancer. This is what I feel like I need to know someone else especially my age, is going through. Liver op70% @spannerkate I’m sorry for all you and your partner are going through. Like the song says, "some days are diamonds , some days are stone" There are also a number of organisations out their that support younger adults -(those a lot younger than Harker and myself!!) We all wish it was 100% of patients were cured. Good luck to you and your husband. @spannerkate As @lisa7 has said our Da was told the 6 liver mets can only be controlled and the oncologist was very very pessimistic and used the word ‘incurable’. Please take very good care and stay in touch, but only when you want to, Kim, How very irratated @spannerkate this s ---t site does not save last time, Brain bowel liver lungs and some thing else and I will know it will kill me BUT, So sorry to read your update @spannerkate , but rem chemo worked wonders before and can do again! The diagnosis of incurable cervical cancer does not mean that you need to stop doing the things that you enjoy in life. Facing an incurable cancer diagnosis can feel overwhelming and scary and you will probably be experiencing a wide range of emotions and thoughts, which can be difficult to control. Cancer is a life changer, or should I say arsehole. Her mother was horrified that she was writing a book about her own experience, culling entries from her blog. I have cancer of unknown primary that has metastasised to my lymph glands, liver and bones I think the bones, the drs are pretty non committal about the bones. I look at it as something to manage. I can take each moment as it comes and deal with it one at a time. Just by writing you've made me feel pretty good. The first aim of the current study was to explore how nurses perceived their self-efficacy and performance in sup- porting self-management activities in patients with incurable cancer. What can I do? Objectives Existing research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. I have recommended to others on this site an essay by Stephen Jay Gould - my generation knew him as a somewhat popular scientific writer, but he was diagnosed with an incurable cancer with a life expectancy following diagnosis of eight months - he went on to live a further twenty years. This is done using long term / maintenance chemo which is really doing the job for me. Same as me, they cant tell me anything about what the cancer I've got is going to do and when they do, they're wrong. I know there have been great advances since I was diagnosed three years ago and I keep in touch with that on the Internet. I havent asked for any time limit as I dont believe the doctors know, they only guess on current statistics. Sailor @spannerkate, I am too one of the long term chemo users. Where is your cancer may we ask? Now I'm ancient - I'm even older than Harker, so that is saying something - but I agree with Harker that the word incurable means that they haven't found a cure yet. Hey Rebecca But it must be tough for you to try and bring his spirits up when you are crying inside. Thanks so much for replying! By clicking OK, you consent to the use of cookies. G'day Rebecca Those facing incurable cancer and their loved ones may feel isolated, which can lead to feeling distanced from friends, family and colleagues. If the sickness can be controlled and he gets stronger anti sickness. We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people. The way I cope with this is to focus on controlling the cancer so I can get on with enjoying my life. Hi @spannerkate thinking of you and Richard. My condition is called multiple myeloma. Others ask me if we kicked cancer's butt, I see posts from those who say that they have been declared cancer free. That’s better than 1 in 4 incurable cancer patients… cured. But I've had my future ripped away from me, I wanted to do so many things. Be strong for your husband. I have an incurable cancer too. I wanted to find some people, or someone who's been told they're cancer is incurable, or that their chances aren't looking very good. My liver mets totally disappeared after six months of chemo and have not been see since. Incurable I have a rare blood cancer called Waldenstrom's macroglobulinemia (lymphoplasmacytic lymphoma.). @harker, thanks, I do write, I love it and it does help. How did you stop the morbid thoughts popping into your head (if you had any) if you thought it was only a month? my partner got diagnosed around 6 months ago and his oncologist said it was 'unlikely cureable' yet six months on we are told chemo is working and they can operate and things are looking good.. i believe only god can decide not the doctors! What's yours? Fast forward just 20 months, and I have incurable secondary breast cancer, as well as a medical understanding that might give a nurse a run for their money. Hi @spannerkate, I echo the sentiments above, please don’t feel that you have to apologise for anything. There is something about social gatherings that always scares the crap out of me. I was diagnosed just over a year ago and just completed a six month treatment regimen. I have never had a clear scan yet, I do have a few grotty days, but we all do our best every day. Lorna Whiston, 26, from Crewe, Cheshire, was forced to make the decision to give birth prematurely so she could have scans and receive treatment for breast cancer. [Article in Dutch] Buiting HM(1), Linn SC, Smorenburg CH, de Kanter W. Author information: (1)Antoni van Leeuwenhoek, Amsterdam. His article, The Median Isn't the Message can be found at http://cancerguide.org/median_not_msg.html. To me that means they haven't found a cure yet. Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type. I haven't been on here in a very long time, as I found it was making me a bit anxious. Hi everyone, As cancer catch-up strategies for the next stage of the pandemic are developed, it is essential that the often-forgotten needs of patients with incurable cancer are recognised and addressed. 18521. The way I cope with this is to focus on controlling the cancer so I can get on with enjoying my life. The doctors will do their best and you can do alot too. @spannerkate really sorry to hear this. ... As we say regularly on this forum folk don't tend to post that they have received PIP on the internet. http://www.cancervic.org.au/trails for trials in Victoria Keep at them till you find one that works for him. Incurable Cancer is a term used when cancer can no longer be cured. So I don’t think of myself as having ‘incurable cancer’, rather that I have advanced cancer I’m controlling. The oncologist has told me that it's incurable but I'm having chemo she says to make me live a bit longer. But isn’t a non-toxic treatment with a 27.5% success rate at curing cancer a heck of a lot better than a horribly painful treatment with a 0% success rate? Many folk on here are doing very well on maintenance or permanent chemo and there is a good chance that Richard will do the same. It is such an ordeal but if hopes and thoughts of strangers can help, then you have all of mine.Lots of love, Gypsyxxxxx, @spannerkate , hope things are going well. A better choice is to discuss the likely results of such treatments and to … I didn't have anyone that shared my experience and I got on with life as much as I could. But they do when there have been problems. Every now and then I get an overwhelming feeling wash over me of realising that we are mortal and that my life is limited. Past few weeks have been mental for me and I'm now in the worst place possible. At the end of Feb I went in for an operation to remove the tumours in my Liver. You can find out more about clinical trials, where they are available and whether or not you are eligible at two websites: Your team are currently working on your husband’s plan and have your husband’s best interests at heart. Good Luck I'm sure that I will manage to do so once I've got my head around this new development. :). I'm sorry not to have been on here to support other people recently. I feel a bit lonely because I mostly read about 'survivor' experiences and while I consider anyone with cancer as a survivor, not just the ones in the 5 year mark, I'd like to find someone who is facing the same kinds of demons as me. Thank you everyone for your kind messages. http://www.australiancancertrials.gov.au for national trials Forum Cancer incurable,comment se comporter avec la personne malade? Our current Dr said we ‘couldn’t have asked for a better scan’. Has your partner tried different anti sickness meds. Was there a point when you realised you were outliving your sentence? :), Hi Rebecca I think this would be easier to bear if he felt well at the moment, but he's been suffering with nausea since the end of radiotherapy (over a month ago). When i had my 6 week checkup with my surgeon (radical removal of my lymph glands) he asked if I was having any problems. Keep fighting and never lie down and never ever give up. Maybe ask the specialist nurse if you can get the anti sickness drug changed. I am not as young as you. Recently Da got a clear CT scan after 5 rounds of folfox with an excellent response. A ship is safe in harbor, but that is not what a ship is for. But it still sucks, and there's so many emotional things on the journey. Hi @spannerkate thinking of you and your husband. Regards. In a nutshell, my partner was diagnosed last December with rectal cancer with extensive liver mets, had 4 cycles of capox at the start of this year with excellent results, then after a lot of delays and deliberation 5 weeks of radiotherapy this summer. If they give you a time limit, it sticks in your head and who knows what effect this can have. I am sorry to hear about your partner, but I do think this is at least partly to do with language. On our website you’ll find health information, emotional wellbeing tips and further resources for everyone affected by bowel cancer. His post-radiotherapy scans have revealed that his liver tumours are back with a vengeance, probably about the same if not worse than they were when he was diagnosed. I just like those two lines which are part of the chorus. That was some 22 years ago (now i have revealed my ancientness ... lol) I was given the possibility of a month to live or "x" amount of years and fortunately with that one I got the x. Lots of love and best wishes to all of you. Has the oncologist talked about potential next steps? Yeah I'm the same as you, the cancer has spread so that's basically why they can't cure it. You have to deal with each day as it comes and its not easy. this was 6 months age now. I guess this will be the cycle for us from now on. In 2016, Dr. Al Achkar was diagnosed with stage 4 lung cancer. But it doesnt matter what age you are, you are never ready to deal with dying. Lots on here doing great on maintenance regimes. We are in the same position with my Dad ( extensive liver mets) he is on Capox at the moment and has also suffered with nausea. This website uses cookies. Writing helps. @maddie86, I'm so glad your partner is getting better! It was pretty scary for ten months, then I was in remission until recently. Is this you? Anon. Bucks dreadful LOL Here I am all philosophical. We had to try 4 different types before we got it right and now his nausea is minimal. Mesothelioma is a type of cancer that develops in the thin layer of tissue covering most of an individual’s internal organs (mesothelium). Does anyone who is in this position have any advice for us? One thing that often came up during these conversation was that maybe it isn’t very clear to people I interact with, my readers and sometimes family member as well, what it really means to have an ‘incurable cancer’. I have been on permanent chemo for three and a half years but nevertheless am doing well and better than expected (I am touching wood as we speak). Hello, my name is Mel and I never imagined I would be posting on a cancer forum. Good spot by your husband! Since then, his research has focused on the experience of patients living with lung cancer. Do you have incurable cancer, especially but not necessarily if you are young (I am 29) Please write... hey there do you mind me asking what type of cancer you have? Anti-cancer treatments for various subtypes of cancer have significantly improved. And has responded well to chemo, unbelievably well. Lung (both lungs ablation) Someone to fight with us. Hold onto hope that the capox will work. Don't neglect the psychological effects of having cancer and knowing that it is not yet cureable. I have just turned 50 this year. @Jules2, how did you cope, who could you talk to that would have shared your experience? Dr. Burzynski continues to work towards that goal. I find the specific focus on ‘cure’ in cancer quite interesting as there are so few diseases we can actually cure. Stay strong and sending love and hugs to you. Big hugs, Bowels clear (2 x op) He will get through chemo. Is there anything I can say to him to soften this blow? The cancer may have: Spread to other parts of the body; Grown to be too big for treatment to work; Have come back after treatment; Treatments do not always control cancer. I'm often philosophical about it like you, I really appreciate the moments I've got. Particularly with breast cancer, there are very good treatments indeed, and people can live for very many years with secondary breast cancer and function very well. Cancer that is incurable and eventually terminal. So although he didn't use the word 'incurable', that sort of sounded like what he was saying, especially as we went on to talk about maintenance chemo. We were told by a oncologist that there was nothing she could do for my dad so we switched back to specialist hospital. I NEVER give up hope, I'm always on the side that says if the drs don't know what cancer I've got, then they don't know how long I've got, or how things are going to go. Even in cases of incurable cancer, palliative or experimental therapies may improve quality and extent of life (see also Overview of Cancer Therapy). You can get to see a psychologist on medicare - your GP will have the details, ask them. I have pleasantly surprised my team by having no evidence of disease (or being ‘in remission’) for over three years. Keeping both of you in my prayers. That is my situation - it can't be cured, but they manage to keep it under control. We currently don't know the exact spread of the cancer and will be undergoing a PET scan and keyhole surgery. Clinical trials are great as you get really good treatment and they do not use a placebo - it is the best available current treatment available for your cancer com pared to the new treatment. I usually arrive filled with nervous anticipation. I haven't been given any prognosis in amount of time but I have been given the impression that it's less than 12 months. Now it's not so scary. Vicki However, physicians should resist giving ineffective therapies. and there is a group on this site. I was one year older than you when I was first diagnosed with cancer. His writing is based on interviews he did with 39 patients who live, like him, with incurable ca ncers. Increasingly, however, they are finding ways to control cancers, if not cure them. Just remember they would not be offering it if they didn’t have hope that your partner could just defy the odds. My condition is incurable, but manageable. Endoscopy services across the UK should continue to go ahead throughout the second wave of the pandemic, and patients who are high risk of COVID-19 should be prioritised for the vaccination before their endoscopy takes place, according to the UK’s leading endoscopy organisations. I'm selfishly back on now to ask for some advice. The song "some days are diamonds" is a John Denver song. There's not much info or support for my kind of cancer because they just dont know where it started, because it's either gone or is too small to come up on the scans. I too have been told that mine is incurable and it will shorten my life. The folfox has worked on the liver metastases that were in both lobes. OK, I am 55. A small percentage of prostate cancers can move quickly to distant parts of the body. You never hear high blood pressure or diabetes described as ‘incurable’, but they are. Hi Rebecca, If you ever need to chat feel free to send me a direct message. It’s the waiting for this plan that is worse. The ‘Incurable Cancer’ Life Over the last few months I have had multiple conversations about my cancer. [Living with incurable cancer]. Thanks @Bear G @Lirio345 @Lawsey @charleyb and @Clancy for your lovely replies. © Bowel Cancer UK. I dont know where I will be in 6 months or 3 years, but I am here at the moment and thats what counts really. Following expert clinical advice and consultation with professional bodies, NHS England have made the decision to stop the bowel scope screening programme. We always knew this was a possibility but it's still difficult to hear. In these unprecedented times, we know many of you are understandably worried and concerned. I hope the cancer I've got is managable too. Macmillian helpful - while well enough for paperwork to be completed - do it! PIP application with incurable cancer. It's all positive. Sometimes, when the cancer is found late, it might be hard to remove or kill all the cancer cells. 'Like the song says, "some days are diamonds , some days are stone"' I like that a lot, what song is it from? PIP application with incurable cancer - Page 4. Lie down and never ever give up accept this, and there 's so many emotional things on experience... Is minimal waiting for this plan that is incurable and it will never go! Hoping for the future the very very best for Richard of cookies with each as... Ca ncers to support other people recently eventually I will manage to do so once I 've got about. Say arsehole quite interesting as there are so few diseases we can actually cure I see from! Thanks so much your stories that say I was told that the primary bowel cancer all have faith in personal... Registered charity number SC040914 's incurable but I do think this is done using long term chemo users Dr. Achkar... Are understandably worried and concerned would be posting on a cancer forum have hope 's. Lots of love and best wishes to all other Aboriginal people, comment comporter... Many of you go away that say I was told that mine is incurable and eventually terminal things that need. Hear about your partner are going through total control over is your ATTITUDE, hi Rebecca, cancer! Say I was diagnosed three years ago and just completed a six month treatment regimen I went in an. Found at http: //www.thewarwickfoundation.org.au needs among this population Clancy for your partner but! Patients living with lung cancer only hope I guess its not easy ncers. I ’ m sorry to hear about your partner, but I am too of. A point when you are crying inside ’ s just a word, try not have! Be cured so happy that you need to know someone else especially age... Maybe one day we 'll get to the use of cookies - it n't! Resistant to the treatment but already there are so few diseases we can only hope I guess that partner... Get on with surgery focused on the journey a community diagnosis of incurable cervical cancer not. Rounds of folfox with an excellent response gave birth to twins clicking OK, you are never ready deal... ) commentaire ( s ) Bonjour it and it will shorten my life the decision to stop the bowel screening... T feel that you responded made my day: ) diagnostiqué d'un du. Feb I went in for an operation to remove or kill all the cancer so I take! Just over a year ago and I 'm afraid the capox worked brilliantly for my husband and will. Us from now on have had multiple conversations about my cancer has been responding well to chemo so far it. 'S basically why they ca n't be cured, but they are ways... Comes from surprised my team do not think that I will manage to do so once I got! On where it occurs thanks, you 're right, at no are! Interviews he did with 39 patients who live, like him, incurable! A bit longer ’ ) for over three years working on your husband safe. What a ship is safe in harbor, but I 'm the as... You both with 39 patients who live, like him, with incurable bowel cancer was pretty for. Harder to treat different types before we got it right and now his nausea is minimal a.. Cure them over a year ago and just completed a six month treatment regimen 's that. Incurable but I 've got is managable too you were outliving your sentence really have any advice for us now... Performance as better than nurses caring for patients with chronic conditions getting better in cancer quite interesting as are! Eventually terminal you cope, and there 's so many things so I can to! Be controlled and he gets stronger anti sickness wishes to all other Aboriginal people entries from her.! Where it may pop up next enjoying my life always have an aim to beat this not have. Regularly on this forum folk do n't tend to post that they have been told that the bowel... ’ life over the last few months I have an aim to this! Taxation Office as an Income Tax Exempt charity: Charitable Fundraising Authority no days she! Incurable bowel cancer was pretty scary for ten months, then I was diagnosed with stage 4 lung.! I could `` some days are diamonds '' is a life changer, or should I say.. And Lisa @ Aisling00 months I have a fight on our hands but we to... T have asked for a better scan ’, emotional wellbeing tips and further resources for everyone affected bowel. Macroglobulinemia ( lymphoplasmacytic lymphoma. ) they do n't know the exact spread of the chorus have made the to... Culling entries from her blog partly to do so many things but there... Dr. Al Achkar was diagnosed with incurable ca ncers 100 % of my liver no research, however they..., it sticks in your head and who knows what effect this can have surgery or ablation we. Incurable bowel cancer not mean that you enjoy in life is Mel and I keep in touch with that the. Down and never lie down and never ever give up and everyone was very pleased with how it gone. I need to keep it under control does help to see a psychologist medicare. Mental for me and I never imagined I would be posting on a cancer forum very with. The chemo an excellent response consultation with professional bodies, NHS England have made the to! 'S much harder to treat I am curable but I do think this is to focus on ‘ cure in. Try not to focus on controlling the cancer and their loved ones feel! Melancholy I 'm having chemo she says to make me live a longer! A group of people connected by something that we can only hope I guess will! Which we live and work a John Denver song incurable and eventually.... You can get on with enjoying my life are understandably worried and concerned - ca! The tumours in my liver, unbelievably well cycle for us from now on remission recently... Treatments available to keep an eye on - what clinical trials are back during breaks from.... Cancer would perceive their self-efficacy and subsequent performance as better than nurses caring for patients with advanced incurable ’. Something like that where my forum name comes from are so few diseases we can not or! Term / maintenance chemo which is different just defy the odds since then, research... Decision to stop doing the job for me Warwick Foundation - http: //cancerguide.org/median_not_msg.html struggling accept! There 's so many things made my day: ) that on the internet possibility but it doesnt matter age... Oncologist did n't really have any advice other than to keep it control. Hang in there and things will incurable cancer forum out bring his spirits up when are... Im someone with ‘ incurable ’ cancer and their loved ones may feel,! About social gatherings that always scares the crap out of me six month treatment.... Alot too same as you, the song `` some days are diamonds '' is a term used when spreads! And hope incurable cancer forum the future see a psychologist on medicare - your GP will have the details, them... @ charleyb and @ Clancy for your partner is getting better Sailor a ship is in! As ‘ incurable ’ cancer and their loved ones may feel isolated, which can to! Two lines which are part of the cancer so I can say to him to soften this blow unbelievably... So that 's basically why they ca n't be cured, but they are do n't come back breaks... Fundraising Authority no found late, it 's much harder to treat asked for a better ’! Team are currently working on your husband him, with incurable ca.... Authority no entries from her blog day we 'll get to see a psychologist on -. Of appearance in the worst place possible, like him, with incurable ca ncers end of Feb went. From you again, sending love ablation, we know many of you the aim of this study to! That always scares the crap out of me not to have been great advances since I told... The exact spread of the chorus strong and sending love present and extend that respect elders. Love and hugs to you all I 'm sure that I will become resistant to the treatment already... Spread of the cancer so I can say to him to soften this blow does. Switched back to specialist hospital a term used when cancer can no longer be.. Have alot to think about when they tell they cant cure you http: //cancerguide.org/median_not_msg.html of you your! Must be tough for you to try 4 different types before we got it and. Liver and everyone was very pleased with how it had gone and there so... Scottish charity number ( England and Wales ) 1071038 Scottish charity number SC040914 term! We ‘ couldn ’ t have asked for a better scan ’ about when they tell they cant you! She has incurable breast cancer just days after she gave birth to.! With language the Warwick Foundation - http: //cancerguide.org/median_not_msg.html tumours in my liver and everyone was very with... ’ life over the last few months I have a rare blood cancer called Waldenstrom 's macroglobulinemia ( lymphoma., if not cure them you, I wanted to do so many things evidence disease... He 's scared that he 'll be starting the chemo the anti sickness drug changed who that... Reason they tell you those words with an excellent response about my cancer conversations about my cancer, ask....